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| D Gallagher From: Reno, NV Website: E-mail: da_gallagher@hotmail.com |
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| Stephanie G From: Milford Delaware Website: http://www.myspace.com/stephi0070 E-mail: Stepi0070@comast.net |
I have almost 5yr old twins. One has been diagnosed with SM, the other soon will be. The diagnosis just came about within the last two weeks. I'm very new to this, and am trying to find any and all information I can about this disorder. It gives me hope to read that soo many people, can over come this, and lead productive lives. I also agree that ... as frustrating as SM is, there are soo many other diseases out there that could be worse. Still, it is what it is, and I know how my children feel inside, after researching more about this. I feel frustration with the school, as they are to begin Kindergarten in August. There have not been any children in this school that have had SM, and everyone looks at me like I have twenty heads when I try to explain it. Any help, or other parent wanting to give some wisdom .. send it my way PLEASE! Added: May 13, 2008
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| Lisa Diaz From: NW Indiana Website: E-mail: LisaDiaz0726@sbcglobal.net |
15 yo daughter, Melanie, diagnosed with SM at age 7, has been very resistant to treatment Added: May 12, 2008
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| Jeani Nelson From: Cornwall, NY Website: E-mail: jeani_nelson@yahoo.com |
On my 57th birthday, I heard a snippet of a segment on the Today Show with Matt Lauer regarding SM. Until that time, I had no knowledge of any other person having the same syndrome. Although my parents and the school system sent me to the various psychologist and specialtists (whom, by the way told all concerned that I was just "stubborn") I went undiagnosed until now. It started the first day of kindergarten and followed me to some degee through junior high. Very devastating impact on my childhood (and life). Would like to hear from other adults with this ailment. Added: May 6, 2008
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| jENNIFER From: ATLANTA Website: E-mail: JRJONES30076@YAHOO.COM |
MY DAUGHTER HAS SELECTIVE MUTISM Added: May 4, 2008
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