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Melissa From: Website: E-mail:	i'm 16 years old and have been fighting selective mutism for yea**ince kindergarten. I went through school without talking to the kids or teachers. I did talk to kids but things soon changed. My kindergarten teacher was really mean to me. She made me stand by her desk all day until I talked to her, which I didn't. She threatened me and did other things that are too tramatizing to say. I probably would've talked if my kindergarten teacher hadn't treated me that way on the first day of school. It has been a very long, hard journey for me. I went to school until I was in tenth grade and went through so much. When I went into tenth grade this year, I was hanging on by a thread. I had finally had enough and stopped going. I got accepted into the virtual high school program, which is just like regular school except everything is online. It was the best move I had ever made. The kids at school have no idea where I went and I don't really care. They are the ones who drove me out of school in the first place. I am still very sad since I am still struggling with sm. I don't know how I'm going to achieve anything in life and often have feelings of hopelessness and depression. I can't talk to family members because they don't understand and seem to think all I am is a mental freak, which I'm not. I have no friends at all. I want to get out of this cage I've been trapped in for years. I want to spread my wings and fly. I have low self esteem and no confidence. Whenever I go into a social situation, it makes me very nervous and I get sweaty hands. I also chew at my lip and chew my fingernails to ease my anxiety. I am really dreading this christmas because I feel like everyone there is againtst me and thinks i'm weird. What should I do? Well I better go, your website is awsome by the way. I was glad to have come across this site. The information was helpful but also made me even sadder to know that this is the only thing thats been keeping me from being myself. Added: December 18, 2008
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Joann Schroff From: Ocala FL Website: E-mail: madmaebel@aim.com	Hello, My daughter is 19 years old she has been dealing with sm since she was 31/2 yrs old.It was like she woke up one morning and just stopped talking. For the last 16 yea**he has only spoke to myself and her 2 siblings.When she started school it was very difficult, but the elem school she went to was very supportive of her. Our first encounter for treatment was with a psychologist and he said that he couldn't help her because she didn't speak. This was VERY frustrating! Then I was told that it was a chemical imbalance and that it would balance itself out. When my husband and I divorced she stopped talking to him also. As the years went on school got more difficult. By the time she went to high school I could see her frustration growing.Although she was doing her work and passing her tests they still dropped her grades for lack of participation.She got to the point of not trying because she would be penalized.Her junior year I let her withdraw from school and get her GED.Her GED teacher was so mad at the H.S. she attended because she tested my daughter and found her to be very intelligent. This teacher urged me to sue the school board. I talked to my daughter about it and she did want to have to go through it.She doesn't want to further her education because of this. Just wanted to put my thoughts here, because for years I have been explaining this condition to the people around us.People are very supportive and just love my daughter and her personality. Added: December 18, 2008
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shelly From: concord, nc Website: E-mail: shellbal@live.com	I have a 6 year old son that has selective mutism. He will talk up a storm at home but at school and social situations he shuts down completly. It is causing problems at school because they can not test him because he will not speak. It breaks my heart to see him shut down when he is not comfortable. I am hoping to find someone in the charlotte area that might be able to help me. I am not having luck finding someone that specializes in this and most people do not understand. They think you can just make him talk and that is not the case at all. Any suggestions? Added: December 14, 2008
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Sherry Ford From: Louisville, KY Website: E-mail: sford1@humana.com	Thank you for your wealth of information, your website has helped me with finding the information that I need to find help for my child Added: December 8, 2008
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ann From: MASSACHUSETTS Website: E-mail: kann1227@yahoo.com	Hi Rachel, I have a 10 yr old daughter with sm. Some things I found to help are going to her classroom a little earlier inn the morning and playing games(hangman, tic tac toe,etc) on the board with her, myself and ger brother and eventually the teacher, to increase her comfort level. Also, the school started a recess friendship group where they drew, played in the adjustment counselors office. I've even started an afterschool craft club at school for the girls in her grade. But honestly, it's so hard seeing her go thru school like this. I haven't been able to find a therapst who's been helpful. I see you're from Northampton, have you found any therapist in MA? Thanks Added: December 7, 2008
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Richelle From: Nebraska Website: E-mail: yersumpinelse2@aol.com	Hi,I am a mother of a 16 yr. old daughter with SM. Although see appears as every other normal child, she has suffered with this since headstart, and was diagnosed in 1st grade. She excels at every level in school bringing home nothing but A's. It is only socially in a classroom setting that she struggles. Many teachers have a hard time understanding her diagnosis, and some have even tried not to understand it, by giving her deducted points and "consequences" for not speaking. If only teachers and educators would take the time, and educate themselves, this might be more understood to them. To not understand the child, and to not have patience, only tends to make the child fill up with more anxiety. I am so happy that there's sites like this to come to, and have a better understanding of SM. I saw a phrase referring to SM, which said, "Give her a voice, and wings to fly" It completely overwelmed me and brought tears down my eyes, because although I have a daughter with SM, and she has had many setbacks, with school settings and teachers,she is the most loving, beautiful individual i have met........And I give my promise to her...to give her a voice and make her fly. Added: December 5, 2008
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Donna Scotese From: Philadelphia Pa Website: E-mail: dscotese@verizon.net	I am 46 .When I was a child I was very quiet. Now I think i might've had sm. Teachers tried to help but I do not think they knew about sm. I was able to talk to my parents and siblings. If I talked to others they cold bearly hear me.When I was in my 20's I started taking anti-depressants and seeing a therapist. Now I can talk to almost anyone. I was in special ed cla** for most of my schooling. Added: November 27, 2008
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Rachel peacock From: Northampton Website: E-mail: rachelrose07@hotmail.com	I have a 9yr old daughter who has selective mutisum. I have always found the help for her very limited. Although her school is very good, and understands her condition to a degree. I feel more can be done. I've tried doctors, speech and language, & now feel i've hit a brick wall. I would be very grateful if anyone could give me some advice. Many thanks Added: November 20, 2008
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Mathilde Barbosa From: Rio de Janeiro, Brazil Website: E-mail: mathilde.barbosa@web.de	I have a 5 year old daughter that has SM. Currently she has total mutism and hasn´t spoken in 5 months. She is bilingual and bi-cultural (German). We have just found a doctor with a PhD in SM in Rio. We are hopping it will help. SM is not at all known in Brazil so it is difficult to talk about it. Does anybody know where we can get help, anywhere in this world? thanks, Mathilde Added: November 14, 2008
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Alicia Gonzalez From: Seattle Website: E-mail: avgonzalezortega@hotmail.com	Private post. Click to view. Added: November 10, 2008

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