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Jennifer Luna From: Los Angeles Website: E-mail: carlos_jenluna@socal.rr.com	I believe my 3 year old son has selective mutism and his pediatrician has mentioned it also. He started pre-school last September, and while he tells me that he likes school, he has never spoken to the teachers there and speaks very little with the other children. He is often seemingly over-anxious in social situations. Our recent airplane trip was very difficult and scary for him with so many people around. He speaks well and a lot at home. I believe that this is very difficult for him and I want to know when/if/how I should be looking to help him. I just want for him to be as happy and comfortable as he can be. Added: June 13, 2008
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Marissa From: Webster, NY Website: E-mail: leprcon_914@yahoo.com	My 5 year old son was just diagnosed with selective mutism. I do believe that his father may have this as well. I am just learning what it is and how I can help him. This website has been helpful and if anyone has more advise on how I can help my son please contact me. I have already gone to his school and they are more than willing to help. Added: June 8, 2008
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Dineen From: Website: E-mail:	I was diagnosed with selective mutism when i was about seven years old. I didn't know what was wrong with me. Everyday I would go to school and hear the other kids talking out loud, while I was only heard with a soft whisper. I met with the guidance counselors at my school for 2 years and nothing happened. Then, they recommended that i go to boston to seek more than the average help. The cost became too much so i had to see a local counselor that was about 15 mintues away. He helped in so many ways. A lot times he put me in situations similar to what goes on at home. In about a year and a half, or maybe even less i went back to school talking like a normal kid. I never thought i would be able to get rid of my problem. Now im 15 yrs. old and last year at my middle school's final assembly, i gave a speech to an auditorium filled with over 800 people. It goes to show that kids with selective mutism can get over their problem with proper help and patience!!! Added: May 29, 2008
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Sara From: Westchester, NY Website: E-mail: saraetkin@verizon.net	my 4 yo DD has SM and i would love to meet some other parents, get info on good therapists, learn how to deal with dubious teachers, etc... thanks sara Added: May 24, 2008
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wendy niskanen From: New Hampshire & Oregon Website: E-mail: niskanew@gmail.com	My daughter was diagnosed with selective mutism in the fall of 2005 when she was 9yoa. Despite the time sensitivity of this diagnosis, we were never told by the medical center who made this diagnosis; no treatment was outlined. We literally fell through the cracks until I did some research into her medical records some 9 months later. Thankfully, her school district was incredibly supportive and together we designed a 504 plan for her 5th grade school year which was successful. Now, 2 years later, we have moved to another state and are preparing for her transition into middle school. I have been asked by the guidance staff to pull together some information about SM, because "they have never worked with a child with this diagnosis before." I am astonished at how long it takes for awareness of a diagnosis to filter down to the educational front lines. I suspect that in hindsight, my daughter's teachers will remember many former students who struggled with SM. Added: May 23, 2008
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Beth From: Westmont, Illinois Website: E-mail: bprice@niu.edu	I am a doctoral candidate in clinical psychology and have had the opportunity to work with a child with selective mutism. In my experience behavioral techniques have been successful in very gradually generalizing speaking to a school setting. According to the literature, there is a mixed review on the use of medication for SM, however, it can be helpful for alleviating the anxiety associated with SM. In my experience, it seems possible that the disorder may be rooted in anxiety, but move to a form of habitual, relatively non-anxious behavior. I would recommend keeping this in mind when considering anxiolytic medications as a treatment option. I am happy to share references and ideas with anyone interested. Added: May 22, 2008
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D Gallagher From: Reno, NV Website: E-mail: da_gallagher@hotmail.com	Private post. Click to view. Added: May 14, 2008
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Stephanie G From: Milford Delaware Website: http://www.myspace.com/stephi0070 E-mail: Stepi0070@comast.net	I have almost 5yr old twins. One has been diagnosed with SM, the other soon will be. The diagnosis just came about within the last two weeks. I'm very new to this, and am trying to find any and all information I can about this disorder. It gives me hope to read that soo many people, can over come this, and lead productive lives. I also agree that ... as frustrating as SM is, there are soo many other diseases out there that could be worse. Still, it is what it is, and I know how my children feel inside, after researching more about this. I feel frustration with the school, as they are to begin Kindergarten in August. There have not been any children in this school that have had SM, and everyone looks at me like I have twenty heads when I try to explain it. Any help, or other parent wanting to give some wisdom .. send it my way PLEASE! Added: May 13, 2008
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Lisa Diaz From: NW Indiana Website: E-mail: LisaDiaz0726@sbcglobal.net	15 yo daughter, Melanie, diagnosed with SM at age 7, has been very resistant to treatment Added: May 12, 2008
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Jeani Nelson From: Cornwall, NY Website: E-mail: jeani_nelson@yahoo.com	On my 57th birthday, I heard a snippet of a segment on the Today Show with Matt Lauer regarding SM. Until that time, I had no knowledge of any other person having the same syndrome. Although my parents and the school system sent me to the various psychologist and specialtists (whom, by the way told all concerned that I was just "stubborn") I went undiagnosed until now. It started the first day of kindergarten and followed me to some degee through junior high. Very devastating impact on my childhood (and life). Would like to hear from other adults with this ailment. Added: May 6, 2008

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