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Lloyd Palmitos From: Tullamarine,Melbourne Website: E-mail: bhe_llo@hotmail.com	Private post. Click to view. Added: March 16, 2010
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Deborah Kriss, MD From: Albany, New York Website: E-mail: debkriss.md@gmail.com	I am a pediatrician who specializes in developmental and behavioral difficulties in children. I appreciate your site and refer it to parents and children who have a child with selective mutism. Almost always I find that there is a family history of some kind of anxiety struggle in other family members. Often, these problems were never recognised or appreciated before. So, sometimes a diagnosis of selective mutism in a child will help other family members to have their own anxiety disorders diagnosed and treated. Added: March 8, 2010
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Susan DeSantis From: Colorado Website: E-mail: pncisue@cdmsinc.net	Private post. Click to view. Added: February 25, 2010
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Kelly From: Oregon Website: E-mail: kellyriutta@gmail.com	Private post. Click to view. Added: February 20, 2010
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Tom Hagan From: Hatboro, PA Website: E-mail: tsquare030@aol.com	I have a 7 tear old nephew who has been diagnosed on the Autism spectrum and also suffers from selective mutism. He speaks to his parents and younger brother normally and regularly but does not speak to the extended family nor in school. I see him somewhat regularly and believe I have a fairly good relationship with him, I love him and always make a fuss over him regardless of the fact that he will not speak to me. He motions, laughs and will take me by the hand to show me something but does not communicate any other way. Sometimes he will tell his Dad to tell me about an experience they had but does not want to tell me himself. His parents have him enrolled in special schools and sees a doctor regulary. As far as I know he does not take any medication. He exhibits intelligent thoughts and speaks well when he talks to his parents out of earshot. I have listened to him talk to his Dad on a cell phone with the speaker phone on, which of course he doesn't realize, and am amazed at how normal he sounds. My question is, can it be possible for me to build his trust enough for him to speak to me, and if so what is the best approach I can take without putting undo pressure on him. I always wrestle with him, talk about everything under the sun and try to let him know that I love and accept him whether he talks or not. I try to act almost as if I don't know that he doesn't talk to me. Can anybody relate to this? I would appreciate any advice as to how I can maintain a good relationship with him and at the same time help him overcome SM in some way. Added: February 10, 2010
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Mta From: Ireland Website: E-mail: mtahughes@eircom.net	I see that there's a documentary called "My child won't speak" which deals with selective mutism on BBC 1 on Tuesday night next at 23.35 I don't know if it will be of any help to anyone living in BBC coverage area. Added: January 31, 2010
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Janelle From: Nelson, NZ Website: E-mail: davistwo@gmail.com	I'm just about to turn 27yrs old and a Mom of a 9yr old girl. I have just recently learnt a bit about selective mutism from a documentary on tv here in NZ recently and discovered that its something that I suffer from. After battling depression and sleeping disorders for many years this anxiety still comes back for me on some occasions now. Up until last year I was an adult who would not talk on most occasions even to the stage that I wouldn't contact close family members. This went on for 6-7 years at least... When i was a very young child I was very confident(like what my 9 yr old daughter has been growing up).. but something changed, im not sure what that was. Would be interesting, now I know what I have is not just me being shy and immautre (this is what I was teased for,I had no idea otherwise) to find others that could help me help recover from or get better from selective mutism. Would appreciate any information on treatment Thanks Janelle Davis Added: January 19, 2010
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shannon vanstone From: whakatane New zealand Website: E-mail: shannon98@clear.net.nz	Hi i have an 11 year old son with sm. This is the first time i have heard of sm. And iam feeling a little over emotional right now. Everything i have read on your website makes so much sense. My son cant speak to most people and often whispers so silently that you can not hear him. He gets very nervous around people and even has trouble speeking to imediate relatives. His teachers have been wondering what is wrong with him for years. And yet at home he is a different child. He speaks to us and has an excellent understanding and use of language skills, he's very funny. When out his sister often speaks for him and most kids in his class have a way of understanding what he wants. They just say that oh conrad doesnt talk. We have been told so often that he has a form of autism but we know that is not true. If only you could see him at home he is just like every other kid. I am a little worried as he starts high school in a couple of years. I fear that he will be left behind or made fun of. The thing is, he is so smart, so good with electronics he just cant talk to you. We have noticed in the last few moths that he is strating to wisper louder to his teacher and a few other children so maybe there is hope yet. And he has sarted to answer the phone as he does't have to see the person on the other end of the line. He is also not comftertable around new people and large groups of people often withdrawing.I am so glad that we are not alone and that there are other people who understand. Thank you for your website. Added: January 13, 2010
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Marieta From: Miami Website: E-mail: pif67@comcast.net	I have a 6 1/2 yr. old son who has SM and a bit of a expressive language delay. He's very outgoing funny, talkative at home but extremely shy at school, whispers and teachers can't hear him. His personality totally changes as soon as he gets to school. Every since he was 4 the kids at school say "he doesn't talk" and when he sa**omething they are amazed. He's been tested and tested. Recently he was misdiagnosed with autism which I know he does not have. It's very frustrating and some people just want to give the easiest diagnosis and don't take the time to understand the whole child. I hope all who suffer from this can get help to overcome this. I feel so helpless that I cannot help my child at school talk to his friends or others when I know he can. No one at school knows my son as he really and truly is. This is a wonderful site. Added: January 8, 2010
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Malinda Hollinshead From: Loganville, GA Website: E-mail: mhollinshead23@gmail.com	I am a mother & my daughter has Selective Mutism. I am here to help in the fight to find a cure for our loved ones who have Selective Mutism. Added: January 7, 2010

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