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Submitted by Comments:
Karen Szabo
From: Johnstown, NY
Website:
E-mail: ksmith24@nycap.rr.com
VERY glad to find this site...have been trying to find info on this subject to help my son, who I feel fits this diagnosis. I am open to any and all info and help from others!!
Added: April 17, 2003      Delete this entry
Submitted by Comments:
Laura Foster
From: Texas
Website:
E-mail: lfoster@weatherford.isd.tenet.edu
I am a speech pathologist who will be receiving a selective mute and need all the information and help that I can get.
Added: April 7, 2003      Delete this entry
Submitted by Comments:
frigyik krisztina
From: hungary
Website:
E-mail: friki73@yahoo.com

 

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Added: March 20, 2003      Delete this entry
Submitted by Comments:
Laura Stott
From:
Website:
E-mail: laurastott9519@freeserve.co.uk
I am a student teacher in England with a child in my class who we think has selective mutism. It is not widely understood and discussed here in the UK. I have found the site very useful as there is very little literature availble in the UK regarding this area. I am carrying out a case study on this child and have found the information on the site very useful. I will be reading through the guest book now to find out as much as possible. Keep up the good work. Laura
Added: March 18, 2003      Delete this entry
Submitted by Comments:
R. Smith
From:
Website:
E-mail: wonderwall222@hotmail.com
Hello, I am 25 years old and, from reading the information on this website, I have concluded that I too, might have suffered from Selective Mutism as a child and young adult. Even today, I struggle on a daily basis with social anxiety but have gotten better through therapy and medication. There were days, even in high school, where I didn't open my mouth all day long. My parents always figured I was just shy, as did my teachers. Even though I suffered through those years of torment, I graduated from high school and went on to graduate from the University of Georgia with a Bachelor of Arts degree. I currently work for the local newspaper and hope to have a mental health beat in the future. Don't give up on your children. With the proper treatment and understanding, your children will grow up just as well adjusted as the next child.
Added: March 15, 2003      Delete this entry
Submitted by Comments:
Giselle Baker
From: Toronto, Canada
Website:
E-mail: gbaker@pdadmin.com
I was just surfing the net to see if I could more information on Selective Mutism. I have a douaghter who five years old and has selective mutism. I first recognized that there was a problem when after a a few months in daycare she was not speaking. She would not even communicate non verbally. She entered the daycare at 2 yrs old and her speech was age appropriate. I started actively seaking help when she was almost four. after being in the daycare for one year without speaking she was then home everyday with me for 7 months (because I was on Maternity Leave) and did not feel it was an issue until I enrolled her into a summer program. I all the while thought that maybe she was just really shy.
Added: March 14, 2003      Delete this entry
Submitted by Comments:
Margaret Brooks
From: Phoenix, Arizona
Website:
E-mail: MBrooks743@cox.net
I have a wonderful 5 year old daughter who has always been "shy" around anyone outside of the immediate family. She won't even talk to her Grandparents or family friends she has known all of her life. She will talk to other children, but does not usually initiate conversation first, unless she knows the child.

We had her in pre-school for a time this school year and she seemed to be adjusting well, except for not talking to the teachers. Then about a week before Christmas she refused to go back. As it was not regular school and therefore not required, we made the decision to keep her home. We did not want to force it on her as she would have to start regular school in the fall of 2003 and we did not want her to be too traumatized to do so.

The problem seems to have gotten worse as she has gotten older. Recently she even went through a very brief period where she would go almost all day without talking to her father, siblings and me. That seems to have passed.

I just took her in for preschool evaluation through our school district. She of course would not talk to any of the examiners, but would give non-verbal responses such as pointing to objects. It was here that a couple of the examiners, plus a school psychologist asked me if I had ever heard of Selective Mutism; I had not. When they explained what it was, it was like a light bulb when on. It described my Molly to a "T". Since then I have been trying to find out more about this disorder. Not only do I feel that Molly has this problem, but I think my oldest child may have had it as well. She exhibited many of the same problems when she was younger. We started putting her in situations such as preschool, girl scouts and even a pagent once, to help bring her out of her "shyness". I had worked with special needs children, including children with autism, and at the time said it was like she was boarder-line autistic. I wish I had known about this problem then. I am happy to say she is a very outgoing, talkative 15 year old now. Neither of my boys showed any signs of this disorder.

It has been suggested that I get Molly into play therapy or something to help her out. I will also be referred to her home school for evaluation and a**sment. The school district is very good in helping those children who need it. My third child has a minor speech problem and was placed in speech therapy and a special reading class (the speech problems were affecting his reading). He has been in there for a year and a half now, has advanced to regaular reading for his age (he can read anything now!) and has "graduated" from parts of the areas they are covering for his problems. I feel they will be very supportive of Molly's needs.

I was glad to come across this site in my search for answers and would look forward to hearing from other parents.

Margaret Brooks
Added: March 10, 2003      Delete this entry
Submitted by Comments:
Donna Becken-Diegel
From: New Jersey
Website:
E-mail: mghj28@msn.com
My beautiful bright 7 year old daughter has SM and has not spoken in school. She is becoming increasingly anxious due to performance anxiety for she is expected to read aloud and I'm in search of some help for her.
Added: February 24, 2003      Delete this entry
Submitted by Comments:
Patti Laessig
From: Wisconsin
Website:
E-mail: anaquea@dwave.net
Hi Everyone,
I am the mother of twin sons with Selective Mutism. They will be 20 years old in a few months.

I was the first person to respond to Carolyn Miller's ad in the Twin's Magazine, looking for other parents of children with Elective or Selective Mutism back in 1991. She was instrumental in helping me, by convincing the school psychologist and other personnel the absolute needs of children with this problem. Between Carolyn and Sue, I was able to obtain the special educational services necessary to have the twins placed together in the same school (they had been separated by the school) and after many years our efforts paid off. One began speaking out loud to teachers in sixth grade, and the other following suit, began speaking out loud in seventh grade. They were in professional therapy from the age of 5 years, and continued throughout their entire lifetime, and to this day, remain in therapy. Some of this necessitated by lasting affects of being placed in an "Emotionally Disturbed" class environment, rather than a "Learning Disabled" environment. The difference being, E.D. was used for behavior modification for misbehaved children. L.D. was used for children who were unable to or disadvantaged by their inability to speak. It wasn't until high school that I was able to get them into an appropriate LD classroom.

The good news is that they both graduated from high school with a regular high school diploma in June of 2002, and are both now attending full time at the local technical college.

I just want to encourage all parents of children with Selective Mutism, to get the professional help that these children need, and be their best advocate, because you as their parent, know them best. You as their parent also have many rights and can advocate for your children in their schools, and make all the difference in the world for them.

I will be eternally grateful to Carolyn and Sue for their selfless efforts to create the Selective Mutism Foundation, as it made all the difference in the world for me and my children!

Many thanks!
Patti Laessig
Added: January 31, 2003      Delete this entry
Submitted by Comments:
Laurie Cahill
From:
Website:
E-mail: eirual16@aol.com
Love the website, found it so helpful, i cant wait to receive the information that yo provide.
Added: January 28, 2003      Delete this entry

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