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Sue Evans From: Washington State Website: E-mail: sevans1190@yahoo.com	I have many questions about long term treatment Added: November 19, 2002
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Stephanie From: Website: E-mail: Stepdisney@aol.com	I have just gotten the diagnosis of my daughter having selective mutism. I'm very concerned and looking for any information that may be out there. If you can be of a**tance I would GREATLY appreciate it. Thank you so much for your efforts! Stephanie Neill Added: November 6, 2002
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Teresa Headley From: Website: E-mail: interested102002@yahoo.com	I have an SM daughter Added: November 1, 2002
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Tina Yee From: Michigan Website: E-mail: tinayee1@msn.com	Hi everyone, I am a therapist who just started working with a child who has selective mutism. I do not have experience with treating SM, however, I am doing everything I can to learn about how to help. If you as parents or professionals have any suggestions about how I can help this 11 year old boy, I would greatly appreciate it. Right now my plan is to start by doing everything I can to help the boy and the family feel comfortable with me by playing games with the family present (possibly 'silent' pictionary where you write the word when you guess it, and then if he says the word he gets double points---just an idea--). Then I plan to put a reward system in place, using positive reinforcement. I hope to help the boy by slow steps of systematic desensitization... I am open to any suggestions or thoughts. You can email me at tinayee1@msn.com. Thanks so much for helping me help him!!! Tina Added: October 31, 2002
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Frances Gawlik From: San Antonio,TX Website: E-mail: sanantx1964@aol.com	I'm so happy to have found this site. I have 12y/o old twins who have this silent diagnosis. I've used some of the information to help their teachers, counselors, and doctors to help them understand this silent/loud voice that wants to come out, but cannot. Which makes the person feel helpless and full of fear. This is a silent killer of the happy childhood, I so want for my babies. They are like little angels full of innocence. I want so much to help them help themselves. Frances Gawlik. Added: October 25, 2002
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Ava Ennis From: Bakersfield CA Website: E-mail: noemail@noemail.com	Hi I'm a 22 year old female.I've had selective mutism all my life.Social siturations have always been hard for me.School was the hardest thing I ever had to face.I'm now in college going through this.I never knew what was wrong with me or why I was so differn't from ever one eles.I was always called wierd and stupid ,because I wouldn't talk.People have always asked and wounderd what was wrong with me.My mother nor I couldn't say.Because of it I didn't learn in school what I was suppose to learn.in college I don't know much because I can't raise my hand to ask for help.I had never herd of selective mutism or social phobia.I truly thought I was the only one Added: October 22, 2002
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Patricia Reinhart From: Romeoville, Illinois Website: E-mail: Parhino306@msn.com	I am very interested in the information that I have read here tonight. I am learning more and seeing a perfect description of my son. He was diagnosed with SM about a year ago. It has been very difficult for him in school. He is now in 5th grade and every week I get a written referal from the school because he will not speak in certain situations. They seem to think it is behavioral and I should put a stop to it. I can't seem to get them to understand that its not that easy. He is seeing a psychiatrist and a psycologist for this. He also is ADHD. He is taking zoloft for anxiety and Adderall XR for ADHD. The zoloft is helping somewhat. I do appreciate any information given. Thank you, Pat Reinhart Added: October 18, 2002
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Carrie From: Linden, Michigan Website: E-mail: cmartt1@aol.com	To any parent who is feeling that there's no hope for your child with SM: Here's a story with an incredibly happy ending! My son is seven years old and is in second grade. He had symptoms of SM from the time he was 12 months old! At that age, he would never make eye contact with anyone other than myself and his dad. It only got worse the older he got. He would only talk to us and his brothers. When he was in preschool, the teacher told me that Brent never spoke at all, had no friends, nor did he even try to play with them. She'd never seen such a shy child. I didn't worry too much yet, as it was his first year in school. In Kindergarten, the teacher said the same thing; that never had she seen anyone so shy. She was very young, and I decided that she probably just hadn't had much experience with shy kids yet. Then came first grade. Brent's teacher was well known for being excellent with shy children, and even admitted to loving the challenge of making kids open up. She had been a teacher for over twenty years, so when she called me a couple months after school started to tell me her concerns about Brent, I no longer could deny that something was very wrong. She said he NEVER talked, smiled, made eye-contact, etc. with anyone. Not even to answer a question with a yes or no! He wouldn't even shake or nod his head. She said she had never seen anything like it and she didn't think it was normal. She suggested that he see a therapist. It was so painful for me to see him so miserable every day when he'd get off the bus. I begun reading up on social phobias on the internet and discovered this website. I was overjoyed to finally put a name to what he had, although I was very distressed by what I was reading. It sounded to me that therapy and medications weren't helping much for many children. Some children did benefit from it and I decided then and there to try anything at all. We had nothing to lose. We did bring him to a Psychologist, and he was diagnosed with SM. The doctor put him on Paxil and the results have been seemingly magic! Within two weeks, Brent was actually playing on the equipment on the playground at school and smiling! (Though still not talking.) Several weeks later we upped his dosage, and he began talking and making friends! He has been on Paxil for seven months now and is doing absolutely wonderful! This year in school he is almost normal! It was a huge milestone when he told me the other day, "Mom, I love school." Last year, school was a nightmare for him. I am begging you parents out there! Please try medication for your child! Don't hesitate because of side effects! You can alwa**top medication if you're not happy with the results, but if you don't at least try them, you'll never know if it would have helped. Please e-mail me if you want to talk about it. GOOD LUCK TO YOU ALL!!! Added: October 15, 2002
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Jen Dimmel From: Capreol, Ontario, Canada Website: E-mail: jad@isys.ca	Wow...what a site, and what an entry I just read by Robin Bush about her daughter. I feel as if she were writing about me. How I can not possibly understand your pain as a parent of a selective mutism child, I certainly am taken back in time with my own pain as a victim. I sit here holding back tears from reading about your daughters "silent cries", to the "special school". One thing I've learned is that some of us "quiet" people are most definitely some of the most intelligent. Added: October 10, 2002
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Nancy Walsh From: California Website: E-mail: njw805@aol.com	I'm just heartbroken right now that my 3 year old has all the symptoms of SM. I will get immediate help for her. At home she a vibrant little girl, but in preschool or public places she's so quiet, clingy and uncomfortable. I don't want her to suffer with unnecessary anxiety during her life. Thanks for providing this web site, I wasn't sure what was wrong with her. Everyone sa**he's just shy, she'll grow out of it, but I don't agree, it more than that. Added: October 9, 2002

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