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Submitted by	Comments:
Kerrilee From: Rhode Island Website: E-mail: kerrilee2001@aol.com	I am doing a research project for my child psychology class at school. Is there any body out there who had SM when they were a young child and feel they are still plagued with this disorder as an adolescent or as an adult? If there is anyone who can relate to this question or situation can you please respond(confidentially of course)to: Kerrilee2001@aol.com. Tell me a little back round information,when this usually happens to you,and what you think caused this? It would be very much appreciated. Thankyou! Added: October 16, 2000
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Liz From: Southern California Website: E-mail: imateddybear@iname.com	I was diagnosed with SM when I was 9 yrs. old, of course back then it was called elective mutism. I am 22 yrs. old now and still have the symptoms, but not nearly as severe as when I was younger. I still find it hard to communicate with people I don't know and go grocery shopping and running other errands on my own but other than that, I lead a normal life. I'm even getting married next year. I have seen about a half dozen psychologists and psychiatrists from 9 yrs. old to 20 yrs. old. and was even put on several anti-depressants including Prozac when I was 16 yrs. old. In my opinion, the meds and therapy didn't help. I think that the worst thing that a parent can do is force their child to go places with them- especially school functions like high school football games or punish them. My parents seemed to think that forcing me to go places with them would help (not punnishment), but it only made it worse. I can remember my parents being very frusterated because they would always have to speak for me and didn't know what was wrong with me. Having SM was very painful for me and still is. I had no friends and ate lunch with teachers or in the nurse's office, kids, teachers, and even my elementary school principal made fun of me and told people that I just wanted attention. I hope that more research will be done on SM to find a cause and make more people aware of this because I would never want another child to go through what I went through. Added: October 15, 2000
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maureen From: Website: E-mail: noemail@noemail.com	Are there listings of practitioners familiar with this disorder? Added: October 12, 2000
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June Kamerling From: Richmond, California Website: E-mail: JKamerling@aol.com	Hi, My 5 year old son fits the description of SM, which I just heard of today. I'd like to hear from others about their experience and how and if their children overcame it. Thanks, June Kamerling. Feel free to e-mail me at JKamerling@aol.com Thanks. Added: October 11, 2000
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wendy From: PA Website: E-mail: Erhardtw@solehi.k12.pa.ua	My 2.5 yr old was very quiet last yr in day care. This yr her teachers are very concerned. She rarely speaks. She seems very happy there, but speaks very little. She never says hello or good-bye to anyone at school. She will speak one on one at times with her teachers and the children. As she is only 2.5 yrs old, we are not sure what to do. This goes beyond school. At home she may speak with children visiting, or not. She does not speak to adults, unless they are family we see frequently. After doing a lot of reading, I am not sure what to do with my 2.5 year old. Our pediatrician feels she has SM, but says there is little to do at this point. I feel like waiting for her to get older gives her more time to get used to not speaking. Does anyone have any thought about dealing with this in a child so young? Added: October 11, 2000
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Debbie From: Buffalo, NY Website: E-mail: diggerdave@juno.com	I teach 4 year olds in a prekindergarten setting. One of my children stopped talking last year in day care and has not talked in school since. I want very much to a**t him and his family. Where do I begin? Added: October 7, 2000
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Debbie Kukielka From: Gaithersburg, MD Website: E-mail: debbo@juno.com	I am a Montessori teacher teaching 3-6 yr. old. I have my 2nd case of selective mutism in my class in 3years. The first case took a lot of patience, home visits and over a year before the girl would speak. She is now in first grade and although shy, speaks without problems. I now have a 4 yr. old boy, very bright and happy who is in his 3rd yr. at our school and does not speak. I hope the same strategies used before will help him Added: October 1, 2000
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michelle From: US Website: E-mail: tjferran@erols.com	my husband and i saw 20/20's piece on sm in 1999 and thought that sounded like our 4 year old daughter. she has just begun seeing a therapist who confirmed our belief. We are doing everything we can so next year kindergarden won't be a problem i.e. information for teacher, principal. Added: September 29, 2000
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Judy Kidd From: British Columbia, Canada. Website: E-mail: kidd@intergate.bc.ca	Thank you so much SMF for providing such valuable information. We have a 6 year old daughter with SM and are in tears over this. Her desire to talk but crushing fear prevents her from speaking. Today we are worried about her future in school since she has entered grade one. She does not speak to the teacher but speaks with peers and seems to be falling behind. If you have any suggestions it would be appreciated. Thank you Added: September 27, 2000
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Richelle From: Nebraska Website: E-mail: Neshell26@aol.com	My 8 yr. old daughter has SM. I first noticed this behavior in preschool. She would participate in activities, but would never socialize with the other children. In fact, her lips would tighten, and she would have a frightened look in her eyes, as if it horrified her when asked to speak. We are still working on this with her, and would deeply appreciate any input from parents with children suffering with this. Thank you very much. Richelle Added: September 24, 2000

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